#PickYourPoison

May 29, 2017 in Random, VRUnicorns

Sarcoidosis is a bitch. Neurosarcoidosis is even bitchier. I’m slowly phasing off steroids and am currently on 10 mg. Steroids worked quite well on my overall condition when I was on higher dosage than now, but doctors don’t like that I take them much longer (been going 10 months on/off) and I’m still in the middle of tests for Neurosarcoidosis as Danish healthy is messy these days…waiting lists and IT problems…but at least it’s free (although I’m trying to fast track by paying private hospitals on the side). I can live with the lung Sarcoidosis being untreated as I’m only stage 2 and already have scar tissue, so it might have stopped progressing. I want answers and I would like to ‘move on’ with my life and the psychological part of ‘being sick’ is driving me crazy. It doesn’t fit well with my hypermind and my wish to make and ship a bunch of more VRUnicorns games this year. The damn part about Sarcoidosis is that it’s rare and there is very little knowledge about its appearance, progression and remission. So no answers for me on hospitals…just tests and monitoring. So I feel trapped in my own body. At least I don’t have ‘visible’ symptoms, so I look healthy when I look myself in the mirror. Running joke when I visit the hospitals is ‘that I look so well for a Sarcoidosis patient’ and I can fake being well when I sometimes leave my beach exile and venture into the real world…for a short while. Then the symptoms catch up again and I need to escape and recover. My treatment options are narrowed down to various immunosuppressive drugs (and I keep swimming in the ocean every day…cause that’s still the best pain medication and I refuse to take more poison). It’s pretty much all chemo…and all those drugs and potential side effects scare the hell out of me. Hoping to have a diagnosis on the Neurosarcoidosis soon, so I know whether I can avoid them drugs or have to start considering myself as a ‘real’ patient. Most of these drugs have visible side effects and I’m worried that they will make me ‘realize’ that I’m sick and have a huge impact on my mental health. One thing is having low energy, pain and struggling with work and straight thinking because my brain goes foggy, but losing my hair and getting rashes will definitely not help on positive thinking and trying to fight away the depression that usually hits when the Sarcoidosis takes over. Those times when I think to myself: “I used the be fun” and try to laugh. Luckily mood is fairly high right now, but I worry for when I get under 10 mg. My mantra has always been ‘mind over body’ as I’m born hypermobile and have been working out like a horse since that was diagnosed as a teenager to get away having to much trouble from that. Seems like my body is trying to win over my mind this time around. And damn I hate it.

Natural Luck in Reverse?

January 26, 2014 in Random, Rants

I believe in luck. And I’ve always felt that someone was watching over me and that I could rely on my natural luck to a certain extend. And I believe in faith too. That there’s a reason behind everything that happens to me. That it makes sense somehow. So when another driver hits my car from behind some 15 hours before I was suppose to board a plane towards Seattle for Steam Dev Days…there must have been a reason for it…right? Other than the fact that he couldn’t find his brakes fast enough? Spending weeks in bed with a whip lash have at least given me A LOT of time to think about A LOT of stuff.

OUYAOUYAOOOOPS

September 18, 2013 in Love, Random, Rants

OUYA seems to be wanting to throw all their indie street cred overboard. It’s sad because it’s true. Here’s what the nice guys at Indiestatik have to say about it all. And OUYA itself has finally reacted to all the criticism and changed the terms of the FREE THE GAMES FUND. Guess there was no positive reactions on their first comeback.

Oh, and remember to support Indiestatik on Kickstarter!

Update: Ryan (creator of That Dragon, Cancer) defends OUYA. After all, the team did receive funding from OUYA to develop the game as an exclusive for the platform and wants it to succeed too.

 

JamIT + Fuck This Jam

October 8, 2012 in Love, Random, Unicorn7

After Swedish (Awesome) Game Conference I hurried back to CPH to be at JamIT. And it was a freaking blast! B.M.O., the Beautiful Mess Organizer platform created by Brett Chalupa was used for the jam and I did the voice recording for Bert Baker’s Cunnilingus. The game presentations are here

 

As soon as one awesome jam is over –  another jam is announced. Fuck This Jam is set to roll out November 9 -17 and is all about tributes the games you hate the most – go fetch more info on Facebook.

Crazy Swedes + JamIT

September 29, 2012 in Random, Unicorn7

This coming week I’ll head up to Skövde to moderate Swedish Game Conference and return to Copenhagen Friday to participate in JamIT 2012. It’s gonna be a blasted week and I’ll be  recording video for our unicorn7.org game jam platform both places.

On a Plane

September 17, 2012 in Random

Tomorrow I’ll be flying to the Country of Bacon. Rumor has it that there live more pigs in Jutland than human beings. Apparently a human is very close to a pig genetically. I really hope they’ll fed me bacon.


Unicorns 4EVA

September 14, 2012 in Random

I assume it’s no secret that I love unicorns. And quite a few of my friends do as well.

But then I have this one friend of mine (who I wrote my thesis at Copenhagen Business School with) and he send me  a link to this the other day:

 

I guess it’s revenge for me being high on Red Bull and candy during our late night thesis writing + my constant counter arguments against getting real food: ‘I don’t need real food – I’ve got Red Bull’. What poor Michael didn’t know the-one-late-eve-thesis-writing-event, where he suggested that we got a Red Bull each was that I used to be an addict. A severe one. I had my own dealer bringing cans over from Sweden, when they were still illegal in Denmark.

So yeah, Michael ended up with a thesis buddy, who was jumping on her chair for hours every evening until we handed in, while singing Goa Gartner (yup, on repeat).

And now he finally got his revenge.